Category: elhers danlos syndrome
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Two years ago on Memorial Day weekend, I had an ischemic stroke from brainstem compression due to instability at my craniocervical junction. My dad flew to my house, helped me finish one last job for a client, and then flew me and Spritz up to Massachusetts for what was to become the most challenging 6…
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When I wrote the post below about peace a year ago, I still had a dad and never though that it would be my last Christmas with him. He passed away Memorial Day weekend which was exactly one year from when he flew down to my house in Florida during a very scary time with…
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I’ve needed constant reminders lately of what faith is, what faith needs to look like in my life, and the promises that will follow when I abide in that faith. That walking in faith means not needing to see the road ahead…because of the assurance that the finish line is there…and at it is the…
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Four weeks since my tethered cord release surgery! My surgeon cut through the muscle down to my spine, removed the piece of bone covering my spinal cord, then cut into my spinal canal and removed the very bottom portion of my spinal cord, called the filum. My surgeon told me that when she cut into…
